I hope everyone is having a great (or tolerable) holiday this year. I'm happy to be home, but it just doesn't feel like Christmas to me. I guess I never got into the Christmas spirit this year. Chronic pain can do that to you. My hips are hurting. I would expect the fractured one to be hurting because it is still healing, but the other hip is hurting too. I'm managing. I just feel like I am a lot older than I actually am. Hopefully when I go back to Duke in January they can give me something to ease the pain on a daily basis without narcotics!
Even though I was complaining above, I am very thankful to be home for Christmas this year. The past two years I was in the hospital and feeling like CF was robbing me of my life again. Our family Christmas was Monday and I was so glad to see my sis, bro, and my baby! It was a fun filled day, especially watching my nephew (my baby) opening his presents. It's always good when we can all get together.
I am thankful to God for giving me a second chance at life. I am always praying for my donor and donor's family. I am grateful that even through all the setbacks I've had, none have involved my lungs much. They are still working great!
I hope everyone had a Very Merry Christmas and Have A Happy New Year!
Tuesday, December 28, 2010
Monday, December 13, 2010
Enjoying The Home Life
We finally made it home on Sat. Dec. 4th. It was a looong drive, but we made it in 10 1/2 hrs. We only stopped twice and drove straight through. It wasn't a bad ride, it just took forever, lol. We arrived very early in the morning, but mama had been saying how she felt like a kid waiting for Christmas, referring to us coming home. I went to their house and woke them up. I went to mama and whispered, "Merry Christmas" and she said "Oh my baby's home". She reached over and shook daddy and said "Our baby is home" and he about jumped straight up out of the bed. Mama's specialty is cooking and she offered to cook breakfast at 5:30 in the morning, but I told her to go back to sleep and we would eat later. We had brunch later in the morning. It was great to be back with my family!
I had a bronch on the day we left which was before the results came in. The reason for leaving before we got the results was that my dad was having surgery for prostate cancer the following week and I intended to be there. I had even re-scheduled my appointments so we could leave earlier than planned. Daddy's surgery went well and he is recovering at home, doing better everyday. He won't have to take chemo or radiation because the whole prostate was removed and not just the cancer itself. My family has truly been blessed. Even with all the things that have happened to us, it could always be worse.
I worry about my friend Jess and the suffering she is enduring now. She is currently in the hospital at Duke. She has had Gastro problems since her lung transplant back in April. It makes it a total bummer because it's right at Christmas. I hope she gets out of the hospital before then. I miss you Jess! Love You Cysta!
Being at home has been wonderful. After six months away from home makes me feel like my new home is brand new all over again. The results from my last bronch had no rejection so I don't have to go back to Duke till Jan 20th. I get to enjoy the holidays with my family. A week after getting back home we got a new puppy. We named her Niki, she's a solid black Shih-Tzu. She is a little chomper. She loves to chew on everything she can get her little teeth on, but she's also a cute little fur ball that I can't resist. I still get sad thinking of the two little dogs we had to give away back when I was so sick with bad lungs. I found out later, after transplant, that I can have an inside dog I just have to be careful about certain things. I can handle that. I like having a furry companion because when Philip goes back to work I certainly won't get bored with my four-legged friend, lol!
I was invited to a Christmas Luncheon today from the office that I used to work at. It was really nice to still be considered a part of the work family. I used to sell Avon so when I quit working there I still came by to deliver Avon and visit with everyone. They have all kept up with my transplant process and some of the ladies had a fundraiser for me. They are now in the process of doing another fundraiser for me. They are awesome ladies and I am Thankful to have them as my friends.
Well, that's all I've got to report for now. I'll post again soon. Love To All!
I had a bronch on the day we left which was before the results came in. The reason for leaving before we got the results was that my dad was having surgery for prostate cancer the following week and I intended to be there. I had even re-scheduled my appointments so we could leave earlier than planned. Daddy's surgery went well and he is recovering at home, doing better everyday. He won't have to take chemo or radiation because the whole prostate was removed and not just the cancer itself. My family has truly been blessed. Even with all the things that have happened to us, it could always be worse.
I worry about my friend Jess and the suffering she is enduring now. She is currently in the hospital at Duke. She has had Gastro problems since her lung transplant back in April. It makes it a total bummer because it's right at Christmas. I hope she gets out of the hospital before then. I miss you Jess! Love You Cysta!
Being at home has been wonderful. After six months away from home makes me feel like my new home is brand new all over again. The results from my last bronch had no rejection so I don't have to go back to Duke till Jan 20th. I get to enjoy the holidays with my family. A week after getting back home we got a new puppy. We named her Niki, she's a solid black Shih-Tzu. She is a little chomper. She loves to chew on everything she can get her little teeth on, but she's also a cute little fur ball that I can't resist. I still get sad thinking of the two little dogs we had to give away back when I was so sick with bad lungs. I found out later, after transplant, that I can have an inside dog I just have to be careful about certain things. I can handle that. I like having a furry companion because when Philip goes back to work I certainly won't get bored with my four-legged friend, lol!
I was invited to a Christmas Luncheon today from the office that I used to work at. It was really nice to still be considered a part of the work family. I used to sell Avon so when I quit working there I still came by to deliver Avon and visit with everyone. They have all kept up with my transplant process and some of the ladies had a fundraiser for me. They are now in the process of doing another fundraiser for me. They are awesome ladies and I am Thankful to have them as my friends.
Well, that's all I've got to report for now. I'll post again soon. Love To All!
Friday, December 3, 2010
Time Is Standing Still
I know we are going home to MS today and I have been up since 3:30am in anticipation of it I suppose. I'm like a little kid waiting for Christmas morning. It's just not getting here fast enough, lol. It's six o'clock now so I mananged to waste away part of the time. I can't eat anything because of the bronch so I'll just compute and watch tv. Philip is asleep. I mention that because he has had his days and nights mixed up. He usually stays up till 4am or later then sleeps most of the day. That will come in handy when he's driving us home tonite. We are driving straight through. A 12hr drive. Road Trip! I'm game. If it will get me to my home, I would ride 24hrs straight. I would plan to help drive, but my license expired back in October and I don't want to risk going to jail instead of making it home to MS, lol. Note to self: Get license renewed ASAP. I still can't believe today is the day!!! Come on Friday evening!
Thursday, December 2, 2010
Going Home
Praise The Lord my time has come. I am finally getting to go home to Mississippi tomorrow! I am sooo excited. I didn't want to make it public until after my clinic visit today. Please pray that the bronch I'm having tomorrow doesn't show rejection because that would mean I would have to come right back up here and be admitted to the hospital for another round of ivs. The main reason for wanting to get home is my Daddy was diagnosed with prostate cancer and he is having surgery next week. Please pray that everything goes well. I may have to come back up here next week or the next, but I'm going to be home for his surgery. If I'm not showing rejection, I won't have to come back for at least 4 weeks. I haven't earned my 3 months yet because of past rejection. I have to have 2 clean bronchs before I can stop coming once a month. It's better to be safe than sorry I always say! It's only a 13hr drive, lol! I haven't been home since June! Six months is a long time to be away from family and friends. Please pray for our safe travel tomorrow. I'll update as soon as I get settled back into my own surroundings!!! Did I mention I'm excited!
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