A Whiney Rant

I know I haven't posted in a while, but I've just been bummed out. So far so good with my lungs. The problem I'm still having is the pain in my pelvis down to my knees, in both legs. It won't be long before I go back to Duke, the 20th, so hopefully they can give me some answers. I'm tired of still feeling like an invalid. I can't exercise much because I can hardly walk so I feel like I'm not getting much out of it. I have these wonderful new lungs and I can't even enjoy them to the fullest. I want to go shopping, visiting friends, out to the movie, or just being able to walk at a normal pace instead of a snails. I know it will get better, but in the back of my mind I'm thinking "when this is fixed what else is going to fall apart". I'm thankful to be alive, but I'm still not living yet. I'll get there eventually.

Ok, I'm finished whining now, on to happier news. Christmas was great. Our family decided not to exchange gifts because of all the expenses we have all incurred due to me living in NC. I couldn't help myself and bought all of my family a Duke tshirt, lol! They were like "we said no presents" and I said "don't get excited, it's not much". I liked my newphew's the best. He's 2 and was so cute in his Duke tshirt.

Today I am looking forward to going out to eat with my family. We are going to Long's Fish House and I have been craving that place before we got home to MS. It has been open as long as I have been alive and it is the best. The coleslaw alone with crackers could be a meal in itself it is so good. My mouth is watering just thinking of it. Yummy!

Holiday Season

I hope everyone is having a great (or tolerable) holiday this year. I'm happy to be home, but it just doesn't feel like Christmas to me. I guess I never got into the Christmas spirit this year. Chronic pain can do that to you. My hips are hurting. I would expect the fractured one to be hurting because it is still healing, but the other hip is hurting too. I'm managing. I just feel like I am a lot older than I actually am. Hopefully when I go back to Duke in January they can give me something to ease the pain on a daily basis without narcotics!

Even though I was complaining above, I am very thankful to be home for Christmas this year. The past two years I was in the hospital and feeling like CF was robbing me of my life again. Our family Christmas was Monday and I was so glad to see my sis, bro, and my baby! It was a fun filled day, especially watching my nephew (my baby) opening his presents. It's always good when we can all get together.

I am thankful to God for giving me a second chance at life. I am always praying for my donor and donor's family. I am grateful that even through all the setbacks I've had, none have involved my lungs much. They are still working great!

I hope everyone had a Very Merry Christmas and Have A Happy New Year!