More Planning Still No Going

Today was more of the same. Still planning the travel arrangements. Who knew it would be so difficult to get one sick person transferred from one hospital to another. Okay, it's a little more complicated than I just made it sound. It seems that my nurse may need to fly with me because of my oxygen requirement and the breathing problems I've been having. It started out simple. Me and Philip were going to be flown to North Carolina and take a cab to the hospital. Well, the doctor at Duke said I shouldn't be transported without medical personnel on board, namely my nurse. Well, if we do that then Philip can't fly with me because the plane is a small plane that can only accomodate two other passengers. The plane was going to be delayed until Monday because of weather. Now it seems that it may be Tuesday, due to weather. Also, I'll have to be transported from the hospital to the airport by ambulance. Once I get to North Carolina, I'll have to be transported from the airport to Duke University Hospital by ambulance. Such a major ordeal. I didn't even mention the oxygen and getting accomodations for it to be included on the flight and the ambulance rides. Geez! I'm just scratching my head going I just want some lungs! Get me there!!! Ahh, I feel better now. I know it will all work out and all I have to do is breathe.

I'm Going To Duke

Today I found out I am going to be transferred to Duke University Hospital in North Carolina to be evaluated for transplant there. It seems that the other transplant center, where I am currently listed, doesn't feel like I'll be able to wait long enough for their average wait time which is 6 months to 1 year. Maybe they have too many people ahead of me on their waiting list, I don't know. I know my doctor doesn't want me to wait too much longer and frankly I don't either. The average wait time at Duke is only 21 days! Is that not awesome. I guess they have a lot more organ donors in their area than we have here. It happened like a whirlwind. One of the doctor's came in my room and said "it looks like you are going to be transferred to Duke" and I was like "ok?". It was like wham and my heart started pounding like I was waiting to ride the scariest roller coaster at the fair. The rest of the day me and my mom were on the phone letting family and friends know what was going on. Of course we have no definate answers yet because it is all still being "planned" as in whether I will be taken by airplane, ambulance, or private vehicle. I'm all for a road trip but planning to travel with oxygen is never easy. I guess I'll leave the planning to them and just know that all I'll have to do is concentrate on breathing and keeping my nerves in check.