What A Week!

TGIF! This week has been sooo busy. Let me recap, Monday was my first Bronchoscopy. This is where they sedate you and run a camera up your nose or through your mouth into your lungs and they take a biopsy of the lungs to check for rejection. Afterwards, I couldn't go to rehab because of the sedation. Tuesday as you can read from my previous post, was clinic day. On top of medication adjustments, I have fluid aroung my lungs, and I have a fluid filled pocket on my groin that I have had since I got out of the hospital and will probably have to have a drain tube put in to make it go away and stay away. I also had to have a CT scan of my sinuses on Tuesday. I did not go to rehab Tuesday either. Wednedsay, I actually made a full day of rehab and no other appointments, except for the nurse that comes to give me one of my anti-rejection iv's but she comes later in the afternoon. I finally got to relax a little. Thursday was another rat race. It started out with an appt. at the clinic at 9:30 to get a tube stuffed up my nose to do a 24 hr recording of my stomach acid to see if I have acid reflux, yuk! It's uncomfortable and I'm thankful it is only for 24 hrs. Then we grabbed a bite to eat and headed to rehab. When I exited the car and we were walking to the building, I noticed my pants leg was wet. Well, turned out the fluid filled pocket had run out of room so it started to drain. Thank goodness it was clear liquid, but still nasty. I had called my transplant coordinator the night before about the fluid pocket and she called me back while still at the fitness center and said to go to clinic and let my doctor look at it, so off we went. I didn't get any rehab in Thursday either. One day of rehab this week will be it! If every week was as busy with appointments as this week, I would go Awol on this place. Geez! Today, Friday, I've got an ultrasound of my left arm because it is swollen still and since I've had blood clot in the past in that arm, my dr. wants to rule it out. First thing I'm doing before the ultrasound is getting this tube removed from nose! Yay! Then at 3:00pm I have to go to the hospital and have the fluid removed from around my lungs, not looking forward to that one, but I gotta do what I gotta do. Anyway, no time for rehab today either. I hope next week is a better week.

My World Today

Well I have managed to stay out of the hospital for two months now, but my luck ran out Wednesday, the 5th. It's no surprise. I don't even fight my doctor on the subject anymore. When I was healthier and working I would refuse to come into the hospital. I would take IV's at home and take them to work with me, no problem. Now, I'm just thankful to be able to get dressed everyday without losing my breath.

I remember when I was younger and in the hospital I would get so angry and hostile with the staff in the hospital when I was inpatient, the number one reason being sleep disturbance. Now that I am older and have spent much more time in the hospital the past 8 months than I used to spend in as many YEARS, it has become quite comical to me. I know us CFers have all experienced it to some degree at some point, but last nite was the nite that would never end. I went to bed at 12, which is my normal time even at home. At 1:30 am I had an iv antibiotic given to me, no problem, didn't have to be disturbed too much. Then at 2:30 I was awaken to do a breathing treatment. Come on, I'm breathing fine without it. If I take a breathing treatment in the middle of the night then I start coughing and can't go back to sleep! Then at 3 am the nurse returns and starts another iv antibiotic. To top that one off, the nurse also had to draw blood to check the levels on one of my meds. At some time in between all of the other in and outsI know someone came in and checked my vitals. Lets see, around 5 the resident doc stuck his head in the door to get a report for the big dog (doctor) that comes around later with the whole team of little ducklings (interns) following behind him, lol. I did get served breakfast early today. I didn't even know when they brought it in, it was on my tray when I got up at 7:30 am.
{{Yawn}} I think I'll try to get a nap before everyone starts working their way back down the hall again.